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WELCOME TO LIFE
IN GRIFFINLAND
Our journey with Williams Syndrome & Congenital Heart Disease
One mom's honest perspective and a family's journey through the waters of CHD and a rare genetic disorder.
A place of support, encouragement, and comfort for all those traveling similar roads with medically complex children.
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Jess @ Life in Griffinland
Apr 8, 20223 min read
Peace under pressure
My grandma used to always remind me," Normal is a setting on your dryer." It's amazing what can become your normal, how adaptable we...
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Jess @ Life in Griffinland
Mar 2, 20223 min read
Turn the page...
I'm not sure if this was the universe giving me a sign...but I had spent an hour working on a long overdue update and post a few weeks...
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Jess @ Life in Griffinland
Dec 18, 20211 min read
You should probably double-check that.
Even with a background in healthcare, I still have a laundry list of things I have learned the hard way, cringey moments, and times...
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Jess Hope
Dec 14, 20217 min read
Cowboys, White Horses, and Holland
Once again, I've got about a dozen different posts I've been working on trying to pull one completely together, and once again I'm pulled...
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Jess @ Life in Griffinland
Nov 28, 20216 min read
Please, allow me to introduce myself!
I sat down this morning to finish some of the drafts I had sitting in my blog bank (as I like to call it) and do some editing on the...
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Jess @ Life in Griffinland
Nov 25, 20213 min read
The Art of Thanksgiving
If I have learned anything this past year with Griffin, it's that gratitude will set you free. It sounds so cliche, I know. But, if...
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Jess @ Life in Griffinland
Nov 22, 20214 min read
Twas ever thus...
I truly wanted to commit to at least one entry every week, and you would be shocked to see my portfolio of drafts, but none of those...
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Jess @ Life in Griffinland
Nov 17, 20212 min read
Tricks of the trade!
I feel like it's important to start out with the fact that not ALL Williams kids are medically complex or fragile. They each have a...
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Jess Hope
Nov 13, 20213 min read
Hello! Yes, it's me again...
Needless to say, it's taken me four months to get back here and update, but here I am, finally! Griffin was discharged from our local...
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Jess @ Life in Griffinland
Jul 18, 20217 min read
Dear Heart,
“Have courage, dear heart, for there is nothing to be afraid of and never has been.” This has always been one of my all-time favorite...
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Jess @ Life in Griffinland
Jun 12, 20212 min read
A love letter to my better, other half
Dear Jeremy, How do I thank you for the past week and a half? Really, for the past 14 years... I have not been myself lately; I have not...
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Jess @ Life in Griffinland
Jun 5, 20214 min read
Know your vibe and who’s in your tribe.
Photo by Arthur Brognoli from Pexels If a picture is worth a thousand words, here ⬆️ is my picture for the last few weeks. SMH. A few...
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Jess @ Life in Griffinland
Jun 1, 20211 min read
Sometimes there are no words.
I have spent the better part of last night and today working on three separate posts, all of which are completely different, wildly all...
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Jess @ Life in Griffinland
May 26, 20214 min read
Curve balls, Lemons and Silver Linings
I am the mother of a critically ill child. When this is better, I will be the mother of a disabled child. I never thought I would utter...
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Jess @ Life in Griffinland
May 23, 20214 min read
“...so wildflowers will come up where you are.”
Griffin had a good day yesterday. Nothing too big or exciting happened, it was just a good day where he was stable, improving and there...
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Jess @ Life in Griffinland
May 20, 20212 min read
My π Baby
When I knew Griffin was going to be overdue I began hoping beyond all rational reason that he would be born on Pi Day (that's 3.14 for...
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Jess @ Life in Griffinland
May 19, 20217 min read
It's all messy...and maybe that's ok
Griffin has now been in the Cardiac Intensive Care Unit for 12 days and we have no end in sight yet. Every day is a constant ebb and...
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