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WELCOME TO LIFE
IN GRIFFINLAND
Our journey with Williams Syndrome & Congenital Heart Disease
One mom's honest perspective and a family's journey through the waters of CHD and a rare genetic disorder.
A place of support, encouragement, and comfort for all those traveling similar roads with medically complex children.
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Peace under pressure
My grandma used to always remind me," Normal is a setting on your dryer." It's amazing what can become your normal, how adaptable we...
Jess @ Life in Griffinland
Apr 8, 20223 min read
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Turn the page...
I'm not sure if this was the universe giving me a sign...but I had spent an hour working on a long overdue update and post a few weeks...
Jess @ Life in Griffinland
Mar 2, 20223 min read
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You should probably double-check that.
Even with a background in healthcare, I still have a laundry list of things I have learned the hard way, cringey moments, and times...
Jess @ Life in Griffinland
Dec 18, 20211 min read
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Cowboys, White Horses, and Holland
Once again, I've got about a dozen different posts I've been working on trying to pull one completely together, and once again I'm pulled...
Jess Hope
Dec 14, 20217 min read
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Please, allow me to introduce myself!
I sat down this morning to finish some of the drafts I had sitting in my blog bank (as I like to call it) and do some editing on the...
Jess @ Life in Griffinland
Nov 28, 20216 min read
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The Art of Thanksgiving
If I have learned anything this past year with Griffin, it's that gratitude will set you free. It sounds so cliche, I know. But, if...
Jess @ Life in Griffinland
Nov 25, 20213 min read
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Twas ever thus...
I truly wanted to commit to at least one entry every week, and you would be shocked to see my portfolio of drafts, but none of those...
Jess @ Life in Griffinland
Nov 22, 20214 min read
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Tricks of the trade!
I feel like it's important to start out with the fact that not ALL Williams kids are medically complex or fragile. They each have a...
Jess @ Life in Griffinland
Nov 17, 20212 min read
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Hello! Yes, it's me again...
Needless to say, it's taken me four months to get back here and update, but here I am, finally! Griffin was discharged from our local...
Jess Hope
Nov 13, 20213 min read
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Dear Heart,
“Have courage, dear heart, for there is nothing to be afraid of and never has been.” This has always been one of my all-time favorite...
Jess @ Life in Griffinland
Jul 18, 20217 min read
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A love letter to my better, other half
Dear Jeremy, How do I thank you for the past week and a half? Really, for the past 14 years... I have not been myself lately; I have not...
Jess @ Life in Griffinland
Jun 12, 20212 min read
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Know your vibe and who’s in your tribe.
Photo by Arthur Brognoli from Pexels If a picture is worth a thousand words, here ⬆️ is my picture for the last few weeks. SMH. A few...
Jess @ Life in Griffinland
Jun 5, 20214 min read
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Sometimes there are no words.
I have spent the better part of last night and today working on three separate posts, all of which are completely different, wildly all...
Jess @ Life in Griffinland
Jun 1, 20211 min read
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Curve balls, Lemons and Silver Linings
I am the mother of a critically ill child. When this is better, I will be the mother of a disabled child. I never thought I would utter...
Jess @ Life in Griffinland
May 26, 20214 min read
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“...so wildflowers will come up where you are.”
Griffin had a good day yesterday. Nothing too big or exciting happened, it was just a good day where he was stable, improving and there...
Jess @ Life in Griffinland
May 23, 20214 min read
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1 comment
My π Baby
When I knew Griffin was going to be overdue I began hoping beyond all rational reason that he would be born on Pi Day (that's 3.14 for...
Jess @ Life in Griffinland
May 20, 20212 min read
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It's all messy...and maybe that's ok
Griffin has now been in the Cardiac Intensive Care Unit for 12 days and we have no end in sight yet. Every day is a constant ebb and...
Jess @ Life in Griffinland
May 19, 20217 min read
229 views
2 comments
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